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NIH-NCI: Inserting the Patient Voice in Today’s Health Care Innovation Ecosystem


Online
Event URL: Event Link
Date/Time: October 31, 2017 1:00 pm ET

Patient-centricity is more than a buzz word – it requires being respectful of and responsive to patient preferences, needs, and values in the context of people’s social circumstances. That often means integrating considerations beyond clinical outcomes such as a treatment’s ability to help patients achieve personal goals. Patient-centricity is created by engaging, informing, and actively listening to people with chronic conditions throughout the research process and beyond. This session will explore the recent rise and evolution of patient-centricity, discuss frameworks on when and how to engage patients in research, and present rubrics on good practices for engagement and representativeness. By collectively embracing the voice of the patient, we will maximize the value and impact of research.

Speaker:
Marc M. Boutin, J.D.
Chief Executive Officer, National Health Council